Well yesterday was a rough day for poor Lilly, after they took the breathing tube out she was crying and in a lot of pain. They weren't sure if it was anxiety and her trying to wake up or just pain. Finally after 5 round of pain meds at about 11pm (her breathing tube came out at 3:30pm) she settled down.
This morning she opened her eyes and started to come to. They started to wake up all her organs and most of her tubing has been removed. She is now on pain meds which keep her sleepy but she wakes up to eat (which is just bottles right now). Her mommy finally got to hold her for the first time this afternoon for a little bit. Now that enough of her tubing has been removed she can finally wear a kimono!